Battling cancer takes a lot out of a person’s health and overall well being. A new study shows that adults who have survived cancer during childhood feel older than their age, and generally have lower quality-of-life scores when it comes to health.
Dr. Lisa Diller, chief medical officer of Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, is the senior author on the study. She says, “Our findings indicate survivors’ accelerated aging, and also helps us understand the health-related risks associated with having had cancer as a child.” Diller adds, “What’s encouraging is that the lower quality-of-life scores are associated with chronic disease after treatment, not with a history of pediatric cancer itself.”

As per UPI’s report, the research team gathered data from pediatric cancer survivors in the USA. Overall quality-of-life scores in relation to health were found to be similar among the age demographics of 18-29 years old and 40 years old.

Patients who had experienced more chronic health problems after surviving cancer tended to have lower quality-of-life scores. Referencing another study on childhood cancer survivors, Diller and her team found that only 20% of 7,000 respondents had no chronic conditions.

Studies have shown that cancer survivors are at high risk for heart disease, other forms of cancer, infertility, lung problems, autoimmune diseases, and other similar chronic conditions. These risks are primarily associated with cancer treatment methods such as radiation, chemotherapy and surgery.

Diller goes on to explain that her team’s findings provide a concrete comparison between adults who have survived pediatric cancer and the general population, in terms of quality of life.

Original article

“A while ago, I wrote that “uncertainty is the refuge of hope”. The corollary to this is that certainty is the end of hope. Well, now we have certainty. Daniel will die from osteosarcoma, probably fairly quickly. Any hope I had after his relapse is gone.

In the five weeks since his surgery Daniel has grown a 3 cm inoperable tumor (inoperable due to location) and malignant pleural effusion (essentially liquid osteosarcoma) around one lung. There is also a suspicion of “several” tumors on his pleura, although this is not completely clear.

Sara and Daniel and I have had some horrible, difficult conversations. I know of no good way to tell a 13-year-old child who desperately wants to live that he is going to die. And I know of no good way to tell a 17-year-old about her brother’s impending death.

I have also had some horrific conversations with Daniel’s oncologist about the exact mechanics of how he will likely die, how much medical intervention to practice, and how much time he might have left and how to make this time as comfortable as possible given a disease which is brutally painful and savage. I signed my child up for hospice. I hope you never, ever go through these conversations or experiences.

Daniel, Sara and I are figuring out right now how to go through this period. Prayers, good thoughts and wishes are all appreciated. We will figure out how to let everyone know how you can help if you’d like, and how we will be taking visitors. Please give us some space and time to figure this out — something which should never need to be figured out. Be gentle with us as we walk down this deeply lonely and desperately grieving path which I would not wish on any family.

And please understand that I do not wish to hear that Daniel will be in a better place (what better place is there than home with his sister and mother who love him deeply?), I do not wish to hear that at least his suffering will be over (my child — no child — should suffer this way), I do not wish to hear that God gives his biggest battles to his strongest soldiers (my child is not a soldier — he is a child) or anything similar. Daniel will not be gaining his angel wings. Daniel will die. The end. His heart will stop pumping, his lungs will stop working and his brain will stop processing. He will die. My beautiful, courageous, insightful, loving child will die. And his sister and I will grieve his loss for the rest of our lives. We will love him forever and remember him forever. I will always be the mother of two beautiful, wonderful children. And Sara will always have a younger brother.

And please remember that Daniel will die because we, as a society, do not deem the leading cause of death by disease for our children something worthy of reducing. We are “OK” with the fact that had Daniel been diagnosed 30 years ago with osteosarcoma (the most commonly occurring primary bone cancer which primarily affects children and young adults), the drugs he received and his entire treatment would have been EXACTLY the same, and the outcome would have been EXACTLY the same. We are “OK” with the thousands of children who die each year from cancer. And this year, that number will include my Daniel. My precious, beloved Daniel. Please remember him and us in your thoughts and prayers.”

Original Facebook Truth365 post here.

That Dragon, Cancer is a video game. The autobiographical game is based on the experience of a family raising their son Joel, who was diagnosed with terminal cancer at twelve months old, and though only given a short time to live, continued to survive for four more years before eventually succumbing to the cancer in March 2014. The game is designed to have the player experience the low and high moments of this period in the style of a point-and-click adventure game, using the medium’s interactivity and immersion to relate the tale in ways that a film cannot.

http://www.thatdragoncancer.com