Category Archives: News

Barbara Bush’s heartache at losing her three-year-old daughter to leukemia

Talking to her granddaughter, Jenna Bush Hager, the former First Lady, 87, reveals the loss she and former President George H. W. Bush experienced

Barbara Bush, former first lady and grandmother to reporter Jenna Bush Hager, has spoken about losing her three-year-old daughter to leukemia over half a century ago.

In an intimate interview with Jenna, the 87-year-old reveals the heartache she and former President George H. W. Bush, who is called ‘gampy’, experienced after little Robin Bush, Jenna’s aunt, was diagnosed with only two weeks to live.

‘I was combing her hair and holding her hand,’ Mrs Bush recalled on Today. ‘I saw that little body, I saw her spirit go.’

Born on December 20th, 1949, Robin was the youngest of three brothers; and two years younger than her brother, and future 43rd President, George W. Bush.

Jenna said, referring to Robin, who would be 63 years old if she were still alive today: ‘Gampy actually said recently he hopes when he passes away that’s who he will see first.’

‘It is who he’ll see first,’ said Mrs Bush.

‘She was quiet and gentle, and she had lovely little blond curls,’ she added.

At age three, Mrs Bush began to notice her daughter’s energy waning, and took her to the doctor for a simple check-up.

She said: ‘She was listless, she didn’t want to do anything, just wanted to rest, go out and watch cars go by, so I called the doctor and said, “Can I bring Robin out? I think she has spring fever,” and the doctor sort of laughed.

‘We went out and she had a few bruises on her and the doctor took a blood test and said I’ll call you.

‘She told that is Robin had leukemia. “What do you do for leukemia?” Well, she said, “You don’t do anything. She’s going to die,” and we said, “No, I don’t think so”. And she said, “My advice is take her home, love her and in about two weeks she will be gone.”

Instead, the couple took Robin across America to a hospital willing to try treatment on a child.

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Brave seven-year-old girl shaves her head to support little sister after describing the day she was diagnosed with leukemia as ‘the worst day of my life’

A seven-year-old girl has shaved off all her beautiful red hair to show her support for young children suffering from cancer – including her little sister.

Hannah Gorsegner from Middletown, New Jersey, took the brave decision because she wanted to show her support for five-year-old sister, Natalie, who was diagnosed with acute lymphoblastic leukemia in August 2012 and is now in remission.

Hannah, who said the day her sister was diagnosed was ‘the worst day of her life’, announced her decision to shave her head during an appearance on the Today show last month.

‘I’m going to shave my head,’ she said. ‘This is one of the ways I can help kids with cancer and inspire them to be brave.’

The shaving took place last Wednesday during a Shave For A Cure event held by the Arms Wide Open Childhood Cancer Foundation at the New York Stock Exchange.

Sister Natalie even got to join in and at one point used the clippers to shave her giggling sister’s head.

After Hannah’s head was completely shaved, she had glitter poured on over freshly bald head while the entire floor of the stock exchange applauded.

She wasn’t the only person to have her head saved that day and the others included several little boys and several businessmen who were supporting the cause.

The event raised over $350,000 for childhood cancer, and Hannah donated her red hair to wigs for kids.

‘I hope that someone’s going to be wearing my hair and that they’re going to feel happy about it.’ she told Today.

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Facing death, Lauren Hill teaches us life lessons

You are moved, momentarily. You shake your head and offer a quick prayer for Lauren or, more likely, for the blessing of your own kids’ good health. Then you can’t find your keys and soccer practice starts in 15 minutes and you have to stop at the cleaners and your car has no gas, and just like that the story of Lauren Hill retreats to the big warehouse in your head, joining the rest of the jumble. We are so well informed, yet so poorly versed.

You are who Lauren wants to speak with. It is to you she is dedicating the rest of her brief and precious life. Have a minute?

“One January night, I was having a meltdown,” she begins. “I asked God if I could do anything. I didn’t know what He sent me here for. I wanted to know what He sent me here for. Whatever you sent me here for, I’m ready to do.”

Does she have your attention now?

“What keeps me going is remembering why I’m here,” she says.

Lauren Hill is here for all of us. She’s a soul engine, and all she wants to do for the rest of her life is remind us how good we have it, and that we need to make that goodness matter, for everyone. That would include kids with the cancer she has, which is inoperable and incurable and swiftly fatal and receives very little attention.

To that end, she is doing all sorts of interviews, locally and nationally. Her cause has become a phenomenon, its apex occurring Nov. 2 when she plays in her first college basketball game. The game was moved from Nov. 15 at Hiram College to Xavier’s Cintas Center to accommodate a packed house and Lauren’s distilled timeline. The 10,000-seat arena sold out in less than a day.

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Update: Atlanta Braves Craig Kimbrel’s Cleats Sell For A Whopping Amount!

A pair of gold Nike cleats that were worn by Atlanta Braves closer Craig Kimbrel were sold on eBay to support the nonprofit Curing Kids Cancer organization. Many professional athletes stepped up this year in support of children with cancer and this was Craig’s effort to mark September as National Childhood Cancer Awareness Month.

Craig is the chairman of the charity’s program Players Curing Kids Cancer and the color gold happens to be the symbolic color of childhood cancer. All proceeds from the auction went to cutting-edge kids cancer research.

The Braves closer wore the gold-colored cleats on September 3, 2014 against the Philadelphia Phillies where he picked up his 42 save of the 2014 season and his 181th of his career.

“They raise money for research for pediatric cancer,” Kimbrel said. “September is the month and the color is gold to raise awareness. I decided to put those cleats together and wear them in a game and try to raise awareness.”

“We are going to try to auction the cleats off and try to raise a little bit of money for the charity.”

Well, they did raise some money…the auction ended Wednesday night with the total selling price at $2,275.00

A great cause from a class act guy…thank you Craig for supporting and doing all you can for children with cancer.

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Local family sets out to raise $8 million for pediatric cancer research

The Symmes family knows what it’s like to lose a child to cancer. So in honor of being Pediatric Cancer Awareness Month, the family is putting on several fundraisers to help reach their goal of $8 million.

The Pink Label Event is one of their most successful fundraisers. Local boutiques donated brand new items to be sold at a reduced price. Others donated gently used items as well.

All the money raised will go toward the Caroline Symmes Endowment for Pediatric Research.

Caroline died when she was 5. She had a passion for fashion and loved the color pink. Her mom Libby says she will still fight for other kids.

“When you’re told by your daughter’s doctor that she’s going to die because they can’t do any research. They have no resources then that strikes you and you have got to help other families because we lost Caroline to a disease that should have been treatable,” said Libby Symmes.

Cancer is one of the leading killers of children in America. More than 20 percent of pediatric cancer victims do not survive. Riley Hospital for Children agree that research could benefit these children. They’ve teamed up with the Symmes family to help with funding for a research center through federal funds.

“Riley and the researchers and clinical physicians are able to take those dollars and broaden that for national research grants take that money and make it much larger in this effort,” said Jason Mueller of the Riley Children’s Foundation.

The Symmes family says they can’t reach their goal without corporate sponsorships. But in the meantime they’ll keep raising funds through unique ideas like the Pink Label Event.

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To learn more about the Caroline Symmes Endowment fund, click here.

Devon Still jerseys are in, sent with heartfelt note

The team didn’t give up on Still or his family, inviting him back to the team’s practice squad. It gave him money, health insurance and the time he needs to help his little girl.

But the community also rallied around the Bengals player.

Devon Still’s football jersey went on sale to raise proceeds for pediatric cancer research. The money goes to Cincinnati Children’s Hospital Medical Center, ranked among the top medical centers for childhood cancer research in the country, according to the U.S. News & World Report.

At a price tag of $100, Still’s No. 75 is the fastest-selling jersey in team history. As of Sept. 12, roughly 40,000 jerseys were sold to raise money for pediatric cancer research. That’s nearly $400,000 for pediatric cancer research in just four days.

Sales continue to soar.

As fans and supporters of Still and his family started receiving their jerseys, they noticed a personal note from the player inside, thanking them for their support.

The note read:

“I want to thank you for supporting my family and my daughter Leah through your generosity. It means a lot to me, and it means a lot to families fighting cancer in Cincinnati and across the country. Thank you for giving — we appreciate it more than you know.”

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Meet the ‘momcologists’: The fiercest warriors against childhood cancer

They are the “momcologists,” a nickname for the moms — and dads! — who know the horrific toll cancer takes on families and have dedicated their lives to helping others.

“We are every day moms all of a sudden thrown into this crazy cancer world and have to learn everything,” said Sherwood, 42, of Marlboro, New Jersey. “I probably know more than the average pediatrician about cancer.”

These parents have raised millions to find cures, helped families cope with the blow of a new diagnosis and offered financial support for lost wages, hotels during grueling treatments and sadly, for funerals.

For some, the work lasts long beyond the diagnosis, continuing the fight after a child is cancer free and even after a child has died.

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Alabama QB puts Iron Bowl rivalry aside to honor Auburn student with cancer

Sometimes there is more to sports than who wins or loses, and sometimes even the most heated rivalry in college football can be put aside for the greater good.

Saturday was one of those times.

When Alabama quarterback Blake Sims took the field against Florida, he wore a new accessory on his right wrist, a purple bracelet that simply read “Kayla.” It was a tribute to Kayla Perry, a 19-year-old college student who was diagnosed with neuroblastoma, a type of pediatric cancer that typically presents itself in very young children and infants, 18 months ago.

Perry is currently a freshman at Auburn University.

“Hey guys, you know I’m an Auburn Tiger, but even college rivalries can come together when it matters,” Perry posted Saturday on Facebook with a picture of Sims. “Many thanks to University of Alabama QB Blake Sims for seeing my story, and asking to wear my bracelet this week, and today, especially!”

With the bracelet on, Sims played the best game of his college career. The senior threw for 445 yards and four touchdowns in the Crimson Tide’s 42-21 win over Florida.

The two haven’t met yet, but Perry has a mutual acquaintance who is trying to set up a meeting. In the meantime, she’s just happy that by wearing the bracelet, Sims was able to raise awareness to childhood cancer research and the lack of funding that is going into it.

“We really want people to see this and see this as a problem and take a stand and step up and do something,” Perry said. “When people like Blake step up and they show their support for a cause, it makes other people want to get involved, too. So we’re really glad that he did that and thankful.”

Sims isn’t the only player to show support. Auburn wide receiver Sammie Coates wore the same bracelet last Thursday when the Tigers played Kansas State, and his head coach Gus Malzahn has asked to meet with Perry on Tuesday.

Perry, who launched a website to raise funds for pediatric cancer research on Sept. 1, has already raised over $50,000, her mother said.

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Dick Vitale honored with Heart of Gold Award by Pediatric Cancer Foundation

Lakewood Ranch’s Dick Vitale received the inaugural Heart of Gold Award presented by the Pediatric Cancer Foundation on Thursday in Tampa.

Then he got a surprise.

Following the presentation, Vitale was informed that moving forward the award will be known as the Dick Vitale Heart of Gold Award.

College basketball and ESPN’s greatest ambassador was humbled by the gesture.

“Until I take my last breath, raising money and awareness for pediatric cancer research is my life,” Vitale said.

Vitale was selected because of his passion, commitment to research and efforts to raise money for pediatric cancer.

“The Heart of Gold Award is awarded to an individual or group of individuals that are compassionate about finding a cute and devoted to funding pediatric cancer research,” said Nancy Crane, executive director of PCF.

This past year, Vitale and his annual Dick Vitale Gala raised more than $2.1 million for the V Foundation.

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Fight for compassionate use reform goes to Washington

A proposed new law could make it easier for terminally ill patients to get access to potentially life-saving drugs. The process, known as expanded access, or compassionate use, was a topic at this year’s annual Childhood Cancer Summit in Washington, D.C., Friday.

The summit is the yearly meeting of the Childhood Cancer Caucus, co-founded in 2009 by Central Texas Congressman Michael McCaul, in order to better direct Congressional resources and efforts to the cause of preventing pediatric cancer.

McCaul was also a friend of Austin attorney Andrea Sloan, 45, who waged a brave, public battle for compassionate use in 2013 while in the final stages of ovarian cancer. After months of requests, an anonymous drug company ultimately granted Sloan compassionate use of a drug, but her disease had progressed quickly and she passed away on Jan. 1, 2014.

McCaul said he is ready to introduce new legislation in Congress in Sloan’s honor that would keep other patients from having to wait so long for their requests to be granted—time they do not have.

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